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Region: ON
City: Toronto
Postal Code: M4W
Latitude: 43.68270111084
Longitude: -79.373001098633
Area Code: 0
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Found 49 Websites with content related to this domain, It is result after search with search engine

National PKU Alliance   DA: 16 PA: 20 MOZ Rank: 36

  • National PKU Alliance, Eau Claire, Wisconsin
  • 9,904 likes · 263 talking about this
  • People with PKU cannot process phenylalanine found in all protein

National PKU Alliance   DA: 16 PA: 37 MOZ Rank: 54

  • The National PKU Alliance is a voluntary, non-profit organization whose mission is to improve the lives of individuals and families associated with PKU through research, support, education and advocacy, while ultimately seeking a cure
  • The purposes of the Alliance are: To advance research relating to the treatment and/or cure of PKU by raising

National PKU Alliance Genetic And Rare Diseases   DA: 25 PA: 19 MOZ Rank: 46

  • If you have problems viewing PDF files, download the latest version of Adobe Reader
  • For language access assistance, contact the NCATS Public Information Officer
  • Genetic and Rare Diseases Information Center (GARD) - PO Box 8126, Gaithersburg, MD 20898-8126 - Toll-free: 1-888-205-2311

Phenylketonuria (PKU)   DA: 18 PA: 50 MOZ Rank: 71

  • PKU signs and symptoms can be mild or severe and may include: A musty odor in the breath, skin or urine, caused by too much phenylalanine in the body
  • Neurological problems that may include seizures
  • Skin rashes (eczema) Fair skin and blue eyes, because phenylalanine can't transform into melanin — the pigment responsible for hair and skin tone.

Friends Of Trisomy 21 Research Inc In West Hills   DA: 22 PA: 43 MOZ Rank: 69

Friends Of Trisomy 21 Research Inc: Employer Identification Number (EIN) 954598954: Name of Organization: Friends Of Trisomy 21 Research Inc: In Care of Name

Défi Faites Des Pompes Pour La PCU Nutricia Low Protein   DA: 20 PA: 36 MOZ Rank: 61

  • Nous sommes très heureux et fiers d’appuyer la National PKU Association (NPKUA) ainsi que PCU et maladies apparentées Canada Inc
  • (CanPKU) avec notre défi Faites Des Pompes Pour La PCU afin d’aider à accroître la sensibilisation et d’amasser des fonds pour la PCU.
  • Du 2 novembre jusqu’à la journée nationale de sensibilisation à la PCU, le 3 décembre 2015, Nutricia North

National PKU Alliance   DA: 28 PA: 35 MOZ Rank: 69

  • The National PKU Alliance (NPKUA) is a dynamic patient-advocacy organization for PKU, a rare disease identified at birth
  • NPKUA seeks an entrepreneurial fundraising professional based in the greater Minneapolis/St
  • Paul area with strong leadership skills to drive the organization’s fundraising activity as it embarks on a new phase of fundraising activity.

Adults With PKU > Maternal PKU   DA: 17 PA: 13 MOZ Rank: 37

  • The Maternal PKU Mentor Program is a pilot project of the National PKU Alliance Adult Program
  • This unique program establishes a mentor-mentee relationship between two women with PKU; one being pregnant or planning to become pregnant and the other having already experienced a …

About PKU Patient Registry   DA: 15 PA: 11 MOZ Rank: 34

  • The National PKU Alliance (NPKUA) has created this registry as part of its mission to improve the lives of individuals with PKU and puruse a cure
  • The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you
  • We unite adults, families, regional and statewide PKU organizations, the medical community and


  • The National PKU Alliance (NPKUA) works to improve the lives of individuals with PKU and their families while pursuing a cure

Adults With PKU > Newsroom & Events   DA: 17 PA: 16 MOZ Rank: 43

  • The NPKUA strives to connect the PKU community, raise awareness, and inform on current events
  • Here you will find ways to become involved in your local PKU community and receive the most up to date information on our national conferences, awareness events and PKU news.

Phenylketonuria Genetic And Rare Diseases Information   DA: 25 PA: 30 MOZ Rank: 66

  • Phenylketonuria (PKU) is a genetic metabolic disorder that increases the body's levels of phenylalanine
  • Phenylalanine is one of the building blocks (amino acids) of proteins.Humans cannot make phenyalanine, but it is a natural part of the foods we eat
  • However, people do not need all the phenyalanine they eat, so the body converts extra phenylalanine to another harmless amino acid, …

National PKU Alliance LinkedIn   DA: 16 PA: 30 MOZ Rank: 58

National PKU Alliance Nonprofit Organization Management Eau Claire, WI 200 followers The NPKUA’s mission is to improve the lives of individuals with PKU and pursue a cure.

Nevada Medical Home Portal   DA: 24 PA: 24 MOZ Rank: 61

Information, Tools, and Resources to aid Primary Care Physicians in caring for Children with Special Health Care Needs (CSHCN) and providing a Medical Home for all of their patients.

National PKU Alliance   DA: 17 PA: 28 MOZ Rank: 59

  • National PKU Alliance operates as a non-profit organization
  • The Organization improve the lives of families and individuals associated with PKU through research, support, education and advocacy.

Phenylketonuria (PKU): A Problem Solved   DA: 23 PA: 10 MOZ Rank: 48

  • The National PKU Alliance (NPKUA) conduc … Phenylketonuria (PKU) is a rare metabolic disorder characterized by impaired conversion of phenylalanine (Phe) to tyrosine
  • If left untreated, the resultant accumulation of excess blood Phe can cause physiological, neurological, and intellectual disabilities.

NPKUA MNEA Video Short Version   DA: 15 PA: 6 MOZ Rank: 37

  • Help STOP Insurance Denials for PKU Formula and Low Protein Modified Food
  • ASK your Members of Congress to co-sponsor the MNEA Today!

Phenylketonuria (PKU): A Problem Solved   DA: 21 PA: 38 MOZ Rank: 76

  • The National PKU Alliance (NPKUA) is a patient advocacy nonprofit organization dedicated to improving the lives of individuals with PKU and assisting in the development of a cure
  • Formed in 2008 by 17 state and regional support groups across the country, the NPKUA focuses on critical and unmet needs of the PKU patient community.

Phenylketonuria: What Is It   DA: 13 PA: 45 MOZ Rank: 76

  • Phenylketonuria (PKU) is a rare disorder you inherit from your parents
  • It affects the way your body handles an amino acid called phenylalanine (Phe for short)
  • Phe is one of many amino acids that

NPKUA Study Clinical Neuropsychology Lab, University Of   DA: 29 PA: 17 MOZ Rank: 65

  • The Clinical Neuropsychology Laboratory at the University of Missouri would like to invite you to participate in a new study we’re conducting
  • In the study we’ll be investigating thinking and learning abilities in people with PKU (phenylketonuria)
  • Our goal is to expand our knowledge and understanding of PKU by studying basic

Alliance Of PKU Families   DA: 23 PA: 23 MOZ Rank: 66

  • Treatment for PKU consists of a very strict diet that eliminates virtually all protein
  • In the last decade, treatment has evolved to include the medications Kuvan ( (sapropterin dihydrochloride) and Palynziq (pegvaliase-pqpz) that enables people with PKU to create at …

NATIONAL PKU ALLIANCE, INC., E0296392015-2 Nevada   DA: 23 PA: 34 MOZ Rank: 78

  • Business company NATIONAL PKU ALLIANCE, INC
  • is a legal entity registered under the law of State Nevada
  • Company is located in the register with the Company number E0296392015-2 and with the national number of State Nevada NV20151373624
  • This legal entity was firstly registered on 15th June 2015 under the legal form of Foreign Non-Profit Corporation.

Phenylketonuria (PKU) Screening: MedlinePlus Medical Test   DA: 15 PA: 41 MOZ Rank: 78

  • Phenylketonuria (PKU) is a rare disorder that can cause severe brain damage and other complications
  • A PKU screening test is given to newborns to help diagnose the disease, so it can be treated before it causes health problems

Fundraise Your Way For PKU   DA: 16 PA: 23 MOZ Rank: 62

  • Phenylketonuria (known as PKU) is an inherited metabolic disease affecting the brain, in which the body cannot process a substance called phenylalanine (Phe) in the blood
  • As a result, Phe becomes toxic to the brain
  • Phe is an amino acid found in all proteins, most foods, and in some artificial sweeteners
  • There are 16,500 Americans living with PKU
  • The first line of treatment for PKU is a

Division Of Human Genetics Resources Children's Hospital   DA: 12 PA: 50 MOZ Rank: 86

  • The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research
  • Find helpful resources, educational information, news and events, and how you can take get involved.

About PKU Perspectives PKU Perspectives   DA: 23 PA: 9 MOZ Rank: 57

  • We love to sponsor PKU ­events & other allied disorder programs thru our donation department
  • We welcome your donation request for your next event: Please contact [email protected]

Global Association For PKU   DA: 17 PA: 17 MOZ Rank: 60

  • In July 2017, a regional and several country-based PKU patient organizations from around the world made history by agreeing to form the first international association for PKU
  • This global entity will serve as a supportive umbrella organization to regional and national patient organizations and groups in bridging the gap for PKU worldwide.

Phenylketonuria News Home   DA: 23 PA: 23 MOZ Rank: 73

News NPKUA Urges Adult Patients to Join PKU Registry, Assist Research News HMI-102, Potential PKU Gene Therapy, Fares Well in Phase 1/2 pheNIX Trial News, syndicated NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits News Reduced Gray Matter Volume Found in Brain Region of Early-treated PKU Patients

Home Phe Monitor Updates   DA: 11 PA: 26 MOZ Rank: 65

  • Aptatek’s portable PKU lab consists of a disposable test cartridge, a battery-powered, Bluetooth-enabled test reader and a cell phone app
  • The system uses DNA aptamers to quantitatively and sensitively detect phenylalanine in 5 microliters of capillary (finger stick) blood
  • The user collects the blood sample using the cap of the disposable

National PKU Alliance Brings Rare Disease Fundraising Gala   DA: 13 PA: 50 MOZ Rank: 92

  • Established in 2008, the National PKU Alliance is a collaboration of PKU community members joining together as a national voice
  • The nonprofit organization supports local efforts to raise PKU awareness, drive advocacy and education, and ultimately find a cure
  • Learn more by visiting or calling 715-495-4008.

PKU Diet: What To Eat For Better Management   DA: 22 PA: 29 MOZ Rank: 81

A PKU diet is the key treatment strategy if you have the genetic disorder phenylketonuria (PKU), in which you are missing an enzyme that allows for the conversion of phenylalanine to tyrosine (both amino acids).Because this normal process doesn't occur, phenylalanine collects in the brain and causes cognitive and/or behavioral problems.

Phenylketonuria (PKU)   DA: 18 PA: 50 MOZ Rank: 99

  • The National PKU Alliance is an online support group for adults with PKU
  • A registered dietitian with experience in PKU can help you devise delicious low-phenylalanine dinners
  • He or she may also have great ideas for holiday meals and birthdays.

National Pku Alliance Inc Reviews And Ratings Eau Claire   DA: 19 PA: 30 MOZ Rank: 81

  • Donating to The National PKU Alliance was a start, but I needed to do more
  • Because our daughter would have to be on a strict diet that also excludes all animal meat, my wife and I decided this was the perfect time to go vegan and do our part to support animals
  • I also started a company, CharityPush, that partners with non-profit organizations

COVID-19 (Coronavirus) Infection And PKU   DA: 27 PA: 46 MOZ Rank: 17

  • The National PKU Alliance is aware of social media posts circulating about PKU and COVID-19
  • Please see the below information from Dr
  • Harding, the Chair of our Scientific Advisory Board and Professor of Molecular and Medical Genetics and Pediatrics at Oregon and Health Science University:

Raising Awareness For PKU   DA: 24 PA: 23 MOZ Rank: 81

Christine Brown, Executive Director of NPKUA said, “Funding the most promising peer-reviewed research that will lead to new therapy discoveries and a cure is our goal with holding these events.” Previous cities hosting Lifting the Limits events included Nashville, TN, …

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