National center for rare diseases Results

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Genetic and Rare Diseases Information Center (GARD) – an

(3 day ago) The Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI).

https://rarediseases.info.nih.gov/

DA: 25 PA: 25 MOZ Rank: 26

Home - NORD (National Organization for Rare Disorders)

(2 day ago) NORD and EURORDIS-Rare Diseases Europe Issue Joint Statement on COVID-19 and Orphan Drug Legislation “US and European rare disease patient alliances the National Organization for Rare Disorders (NORD®) and EURORDIS-Rare Diseases Europe are calling for the expeditious development of COVID-19 treatments without the use of orphan drug

https://rarediseases.org/

DA: 16 PA: 16 MOZ Rank: 17

Rare Disease Institute - Children's National Medical Center

(6 day ago) Children’s National Rare Disease Institute (CNRDI) is a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases.

https://childrensnational.org/departments/rare-disease-institute

DA: 21 PA: 35 MOZ Rank: 56

NIH funding bolsters rare diseases research collaborations

(16 day ago) Many rare diseases are life-threatening and about half of those affected are children. Because rare diseases affect a small number of people, they can be extremely challenging to study. Scientists often lack basic information about a rare disease’s symptoms and biology, and the ways a disease can affect people over time.

https://www.nih.gov/news-events/news-releases/nih-funding-bolsters-rare-diseases-research-collaborations

DA: 11 PA: 50 MOZ Rank: 96

National Center for Advancing Translational Sciences

(2 day ago) The National Center for Advancing Translational Sciences (NCATS) is one of 27 Institutes and Centers at the National Institutes of Health (NIH). The focus of NCATS is to advance the science of translation, which is the process of turning observations into interventions to improve health.

https://ncats.nih.gov/

DA: 13 PA: 13 MOZ Rank: 14

NCATS Rare Diseases Are Not Rare! 2020 Challenge Details

(4 day ago) The National Center for Advancing Translational Sciences (NCATS), part of the National Institutes of Health (NIH), continues to seek innovative ways to communicate with others and educate people about rare diseases through social media or art.

https://ncats.nih.gov/funding/challenges/rare-diseases-challenge-2020

DA: 13 PA: 48 MOZ Rank: 61

Genetic and Rare Diseases Information Center (GARD

(5 day ago) NCATS collaborates with the National Human Genome Research Institute (NHGRI) to support GARD, an information center designed to provide comprehensive information about rare and genetic diseases to patients, their families, health care providers, researchers and the public.

https://ncats.nih.gov/gard

DA: 13 PA: 5 MOZ Rank: 18

Rare Diseases Community Resources | National Center for

(7 day ago) Access resources through NCATS’ Genetic and Rare Diseases Information Center (GARD): Call the GARD Information Center at 1-888-205-2331 to speak to an information specialist about rare or genetic diseases in English or Spanish. Find advocacy organizations in the GARD database. Browse GARD’s list of rare diseases and related terms. The list

https://ncats.nih.gov/engagement/rare-diseases-community-resources

DA: 13 PA: 45 MOZ Rank: 58

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